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Specific Service and Support Organizations Related to Illness or Chronic Conditions
Acquired Brain Injury Network of Pennsylvania http://abin-pa.org
Extensive information regarding services and programs as well as advocacy and empowerment for people with acquired brain injury.
Alexander Graham Bell Association for the Deaf and Hard of Hearing –
www.agbell.org
Resources, support, advocacy and information for parents, professionals and deaf and hard of hearing adults.
Alzheimer’s Disease – www.alz.org
Provides information, education and support, including a 24 hour helpline and message boards to share your experiences with others. The 24 Hour telephone number is 1.800.272.3900.
American Arthritis Society – www.americanarthritis.org
Self care information on various forms of osteoarthritis, including knee, hip, shoulder and education on joint replacement.
American Association for the Deaf Blind – www.aadb.org
Information and advocacy, fact sheets and links to deaf-blind organizations in all fifty states.
American Cancer Society – www.cancer.org/docroot/home/index.asp
Information on specific types of cancer for patients, families and friends, and support and information for caregivers, including end of life and coping.
American Diabetes Association – www.diabetes.org
Education and information on living with diabetes such as nutrition, fitness, lifestyle and prevention as well as medical information on the forms and types of diabetes.
American Foundation for the Blind – www.afb.org
Information for families, seniors, children, professionals and employers on impaired visual acuity, including a message board to share information and experiences.
American Heart Association – www.americanheart.org
Resources for caregivers and information and education on cardiovascular disease. An award-winning caregivers site.
American Kidney Fund – www.kidneyfund.org
Extensive information on kidney disease and renal failure, in easy to understand language.
American Liver Foundation – www.liverfoundation.org
Information for patients, families on liver diseases and conditions with links to local resources.
American Lung Association – www.lungusa.org
Information and education on asthma, COPD, lung cancer, including advice on making treatment decisions, quitting smoking and more.
Brain Injury Association of Pennsylvania -- www.biapa.org
To prevent brain injury and improve the quality of life for people who have experienced brain injury and their family members through support, education, advocacy, and research.
Easter Seals – www.easter-seals.org
This website has wide ranging information, advice and service links for children, adults, and older adults as well as military families and veterans.
National Institute of Arthritis and Musculoskeletal Diseases -- http://www.nlm.nih.gov/medlineplus/arthritis.html
Comprehensive information on rheumatoid and osteoarthritis including diagnoses, treatment, disease management and clinical trials.
Multiple Sclerosis Society – www.nmss.org
Information for those living with Multiple Sclerosis, those newly diagnosed, friends and family, research, events, on-line community, and advocacy.
Neurological Disorders – National Institute of Neurological Disorders and Stroke – www.ninds.nih.gov
An A-Z guide on various neurological disorders, information on clinical trials.
Paralyzed Veterans Association – www.pva.org
An extensive site dedicated to maximizing the quality of life for those who have Spinal Cord Injury or Dysfunction. The publications available not only cover spinal cord injury but present information on Veterans benefits and rights, Disability Rights, legal issues, research and education, accessible design, and information on sports and recreation for anyone with a disability.
Parkinson’s Disease – www.parkinson.org
This site has information for the individual with Parkinson’s as well as for the caregiver. Both the individual and caregiver can share their stories with others via this site. Many other features, including publications to order or download.
Pennsylvania Office for the Deaf & Hard of Hearing -- http://www.dli.state.pa.us/landi/cwp/view.asp?a=128&q=245997
The Pennsylvania Office for the Deaf & Hard of Hearing, or ODHH, provides advocacy, information and referrals for Pennsylvanians who are deaf, hard-of-hearing or deaf blind, and their families and caregivers.
Stroke – www.stroke.org
Information and education for those who have had a cerebral vascular accident (another name for a stroke) as well as for the caregiver/support-giver.
Traumatic Brain Injury – www.traumaticbraininjury.com
A comprehensive website of the Pennsylvania Brain Injury Association, providing information on causes, treatments, specialized hospitals and rehabilitation facilities in the state as well as informational videos on-line.
United Cerebral Palsy – www.ucp.org
Provides information and support to individuals, parents, families and caregivers ranging from employment, education, health and wellness, housing, products and services, sports and leisure to transportation and travel.
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