Tourette Syndrome Program 
 

The Pennsylvania Department of Health provides support to the Pennsylvania Tourette Syndrome Alliance (PA-TSA), Inc., to locate, contact and support individuals diagnosed with Tourette Syndrome (TS).  PA-TSA, a non-profit organization, is dedicated to serving the needs of individuals and families dealing with TS by providing statewide community-based, cost-free and non-legal support in the areas of:

  • information and referral
  • education materials
  • individual education programs
  • support groups, and 
  • training and workshops 

PA-TSA can be contacted at (717) 337-1134 or toll free at 1-800-990-3300 or by visiting them online at www.patsainc.org.  Whether you are an individual with Tourette Syndrome, an educator, a health care professional or other service provider, or a family member or friend of someone with TS, PA-TSA has information and resources on the site that you will find helpful.             

 
What is Tourette Syndrome?
  • Tourette Syndrome is an inherited neurobiological disorder characterized by tics---involuntary, rapid, sudden movements or vocalizations that occur repeatedly.
  • The onset of these symptoms is always before age 18. 
  • Tourette Syndrome is not degenerative; intelligence and life span are no different from that of the general population.
  • Individuals with this condition have symptoms that vary from very mild to very severe.  
  • The majority of cases are characterized as mild. 
  • Medication is available to assist in the control of the expression of tics. 
  • Some Tourette Syndrome symptoms are viewed by the uninformed as bizarre, disruptive and frightening.
  • Children with Tourette Syndrome often experience ridicule and rejection by peers, teachers, neighbors and even casual observers because of these symptoms. 
  • There is no cure for this condition. During the teenage years symptoms can become more complex. However, as teens mature many experience marked improvement in their early twenties. 
  • Other conditions often accompany Tourette Syndrome: 
    • Obsessive Compulsive Disorder
    • Attention Deficit/Hyperactivity Disorder
    • Anxiety and Learning Disabilities   
 
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